he Aquarium is a favourite destination for Kallan. He finds tranquillity amidst the marine world, especially his fascination with sharks. He wears a shark fin in reverence to these feared creatures of the sea. His mum Nicola shares his joys.

Sea Aquarium, London, England

  • Image 1 of 20

Defying the Myth A photographic journal illuminating the challenges and triumphs faced by families living with severely disabled children

Carol Allen Storey | United Kingdom

Parenting and caring for a child with severe disabilities is an immensely complex affair. Parents must decide upon a range of decisions that determine the well-being of their children, from surgery and therapies to education, employment, and housing. They must become experts in negotiating the endless bureaucracy of public institutions, which demand that they ‘prove’ their need for assistance. The situation is worse particularly for those who face the dual stigmas associated with single-motherhood and raising a child with disabilities and are often treated as social outcasts exploiting the welfare system.

 

This personal project is ‘work in progress’ chronicling the untold stories of families who Defy the Myths and create safe and enduring worlds for their progeny living with severe disabilities.

 

carol@castorey.com

+44(0)7710077290

Content loading...

Make Comment/View Comments
(0)